Abstract
Objective:
The objective of this study was to evaluate the influence of the presence of siblings with normal development on the burden and quality of life of parents of adolescents with Down syndrome.
Methods:
Cross sectional and correlational study with 25 caregivers divided in two groups: parents who had only children with Down syndrome and parents with other children with normal development. The caregivers were selected from a convenient sample and answered the World Health Organization Quality of Life, Zarit Burden Interview and Brazil’s Economic Classification Criteria.
Results:
It was found that both groups experienced moderate burden and regular quality of life for most families, with no significant difference.
Conclusion:
It was concluded that the presence of siblings with normal development was not a factor influencing the burden and quality of life of parents of adolescents with Down syndrome.
Keywords:
Caregivers; Down syndrome; Family; Family Relations; Quality of life
Thumbnail
Thumbnail
Thumbnail
Note: GSDU: Group of parents only with children with Down syndrome; GSDI: Group of parents with children with Down syndrome and with other child/children with normal development; WHOQOL-Bref: World Health Organization Quality of Life; ZBI: Zarit Burden Interview.
Note: The individual standard deviations were used to calculate the ranges. GSDU: Group of parents with only with children with Down syndrome; GSDI: Group of parents with children with Down syndrome and with other child/children with normal development; WHOQOL-Bref: World Health Organization Quality of Life.
Note: GSDU: Group of parents only with children with Down syndrome; GSDI: Group of parents with children with Down syndrome and other child/children with normal development.