FACTORS RELATED TO BURDEN AND SELF-CARE FOR HYPERTENSION IN FAMILY CAREGIVERS

Lima, Talita Morais Ferreira; Costa, Andréa Fachini da; Lopes, Maria Carolina Barbosa Teixeira; Campanharo, Cássia Regina Vancini; Batista, Ruth Ester Assayag; Fernandes, Hugo; Okuno, Meiry Fernanda Pinto

doi:10.1590/ce.v28i0.92871

Talita Morais Ferreira Lima

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Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, SP, Brasil

http://orcid.org/0000-0001-9284-9121

Andréa Fachini da Costa Corresponding author: Andréa Fachini da Costa, Escola Paulista de Enfermagem da Universidade Federal de São Paulo, Avenida Tívoli, 550 apto 17 São José dos Campos - SP, E-mail: defacosta@hotmail.com

conception

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Drafting the work or revising it critically for important intellectual content

Agreement to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved

Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, SP, Brasil

http://orcid.org/0000-0003-4741-2099

Maria Carolina Barbosa Teixeira Lopes

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Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, SP, Brasil

http://orcid.org/0000-0002-8989-4404

Cássia Regina Vancini Campanharo

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Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, SP, Brasil

http://orcid.org/0000-0002-7688-2674

Ruth Ester Assayag Batista

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Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, SP, Brasil

http://orcid.org/0000-0002-6416-1079

Hugo Fernandes

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Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, SP, Brasil

http://orcid.org/0000-0003-2380-2914

Meiry Fernanda Pinto Okuno

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analysis

interpretation of data for the work

Drafting the work or revising it critically for important intellectual content

Agreement to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved

Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, SP, Brasil

http://orcid.org/0000-0003-4200-1186

Corresponding author: Andréa Fachini da Costa, Escola Paulista de Enfermagem da Universidade Federal de São Paulo, Avenida Tívoli, 550 apto 17 São José dos Campos - SP, E-mail: defacosta@hotmail.com

Associate editor: Dra. Susanne Betiolli

Domains of the Hypertension Self-Care Scale	Mean (standard deviation)
Maintenance of self-care in relation to routine care	69.07 (14.05)
Self-care management measures during pressure decompensation	73.04 (17.95)
Patient’s level of confidence regarding their condition	87.06 (13.80)

Informal Caregiver Overload Assessment Questionnaire	Mean (standard deviation)
Total score	83.75 (28.97)
Emotional overload	11.79 (4.47)
Implications for personal life	31.43 (13.38)
Financial burden	5.50 (3.02)
Reactions to demands	11.62 (4.67)
Efficacy and control mechanism	6.84 (2.78)
Family support	5.94 (2.88)
Satisfaction with role and family members	10.68 (5.29)

		Domains of the Hypertension Self-Care Scale
Variables		Maintenance of self-care, care routine - mean (standard deviation)	Self-care management measures during pressure decompensation - mean (standard deviation)	Patient’s level of confidence regarding their condition - mean (standard deviation)
How do you feel being a caregiver?
Very overwhelmed		64.71 (15.31)	68.62 (16.96)	82.76 (14.94)
Overloaded		71.37 (10.98)	75.69 (15.93)	91.18 (9.35)
Very little/not at all overloaded		67.78 (15.05)	69.26 (20.80)	79.63 (17.28)
I don’t feel overloaded		76.67 (11.26)	82.05 (18.59)	96.41 (4.80)
p-value		0.0645^† † Kruskal-Wallis test;	0.0937^† † Kruskal-Wallis test;	0.0065^‡ ‡ ANOVA;
Do you receive help from someone else for your care?
Yes		69.67 (15.39)	76.33 (14.67)	92.67 (9.28)
No		68.82 (13.62)	71.67 (19.13)	84.72 (14.76)
p-value		0.8227^§ § T test;	0.4743^†† †† Mann-Whitney test;	0.0379^†† †† Mann-Whitney test;
How long have you been a caregiver? (years)
	R^‡‡ ‡‡ Spearman correlation coefficient.	-0.12	-0.25	-0.02
p-value		0.3330	0.0411	0.8952

	Have a rest day in the week		Days of the week you take care of			Lives with the elderly person
Informal Caregiver Overload Assessment Questionnaire	Yes	No	From 1 to 3 days	From 3 to 4 days	Every day	Yes	No
Mean	72.0 (21.5)	90.5 (30.7)	63.8 (24.2)	75.3 (25.5)	91.7 (28.5)	92.3 (28.5)	68.0 (22.7)
(standard deviation)	0.0097^†		0.0079^§ § ANOVA;			0.0006^†
p-value
Emotional overload	11.0 (3.5)	12.2 (4.9)	10.4 (4.9)	10.8 (3.9)	12.5 (4.5)	12.5 (4.3)	10.4 (4.4)
Mean	0.3192^†					0.0687†
Implications for personal life
Mean	25.0 (10.5)	35.1 (13.5)	20.3 (9.5)	26.9 (12.5)	35.7 (12.5)	36.4 (12.0)	22.2 (10.5)
(standard deviation)	0.0041^‡ ‡ Mann-Whitney test;		0.0019^†† †† Kruskal-Wallis test.			<0.0001^‡ ‡ Mann-Whitney test;
p-value
Financial burden	4.8 (2.1)	5.9 (3.3)	4.2 (2.7)	4.6 (2.0)	6.1 (3.2)	6.3 (3.0)	3.9 (2.2)
Mean	0.2515^‡ ‡ Mann-Whitney test;		0.1419^†† †† Kruskal-Wallis test.			0.0026^‡ ‡ Mann-Whitney test;
(standard deviation)
p-value	10.3 (3.3)	12.3 (5.0)	10.0 (3.5)	10.5 (5.2)	12.4 (4.5)	12.5 (5.0)	9.8 (3.3)
Reactions to demands	0.1565^‡ ‡ Mann-Whitney test;		0.1455^†† †† Kruskal-Wallis test.			0.0222^‡ ‡ Mann-Whitney test;
Efficiency and control mechanism
Mean	6.2 (1.9)	7.1 (3.1)	5.4 (1.2)	6.6 (3.0)	7.2 (2.8)	7.1 (2.7)	6.2 (2.8)
(standard deviation)	0.3757^‡ ‡ Mann-Whitney test;		0.1158^†† †† Kruskal-Wallis test.			0.0910‡
p-value
Family support	5.6 (2.7)	6.1 (2.9)	4.7 (3.0)	6.5 (3.0)	6.0 (2.7)	6.1 (2.9)	5.5 (2.8)
Mean	0.5118^‡ ‡ Mann-Whitney test;		0.2750^†† †† Kruskal-Wallis test.			0.4754^‡ ‡ Mann-Whitney test;
(standard deviation)
p-value	8.8 (3.6)	11.7 (5.8)	8.8 (4.0)	9.1 (5.7)	11.6 (5.2)	11.1 (5.3)	9.7 (5.1)
Satisfaction with role and family members	0.0372^‡ ‡ Mann-Whitney test;		0.0556^†† †† Kruskal-Wallis test.			0.1716^‡ ‡ Mann-Whitney test;

		Hypertension Self-Care Scale
Informal Caregiver Overload Assessment Questionnaire		Maintenance of self-care, care routine	Self-care management measures during blood pressure decompensation	Patient’s level of confidence in their condition
Emotional overload	R^† † R= Pearson’s correlation coefficient	-0.26	-0.17	-0.21
Emotional overload	p-value	0.0321	0.1786	0.0824
Implications for personal life	R^† † R= Pearson’s correlation coefficient	-0.33	-0.30	-0.32
Implications for personal life	p-value	0.0060	0.0138	0.0071
Financial burden	R†	-0.10	-0.14	-0.28
Financial burden	p-value	0.4057	0.2562	0.0190
Reactions to demands	R^† † R= Pearson’s correlation coefficient	-0.31	-0.17	-0.08
Reactions to demands	p-value	0.0114	0.1635	0.5101
Efficacy and control mechanism	R^† † R= Pearson’s correlation coefficient	-0.16	-0.08	-0.14
Efficacy and control mechanism	p-value	0.1919	0.5091	0.2413
Family support	R^† † R= Pearson’s correlation coefficient	-0.15	-0.34	-0.22
Family support	p-value	0.2094	0.0047	0.0686
Satisfaction with role and family members	R^† † R= Pearson’s correlation coefficient	-0.17	-0.23	-0.14
Satisfaction with role and family members	p-value	0.1741	0.0635	0.2643
Total score	R^† † R= Pearson’s correlation coefficient	-0.26	-0.28	-0.28
Total score	p-value	0.0294	0.0203	0.0230

[1] Corresponding author: Andréa Fachini da Costa, Escola Paulista de Enfermagem da Universidade Federal de São Paulo, Avenida Tívoli, 550 apto 17 São José dos Campos - SP, E-mail: defacosta@hotmail.com

Brasil

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FACTORS RELATED TO BURDEN AND SELF-CARE FOR HYPERTENSION IN FAMILY CAREGIVERS

HIGHLIGHTS

ABSTRACT

Objective:

Method:

Results:

Conclusion: