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Living with diabetes: the experience as it is told by children

Diabetes mellitus is a chronic disease that demands adaptation in the psychological, social and physical sphere. This study aimed to understand the experiences of children with the disease. Symbolic Interactionism and Grounded Theory were used as a theoretical and methodological reference framework, respectively. We interviewed children in the age group between 7 and 14 years old. A total of 7 topics were identified in the collected data, which were: "Experiencing something unexpected", "Facing a harsh reality", "Being afraid of what is happening", "Living under control", "Trying to adapt to a new reality", "Maturing with this close relationship" and "Seeing this disease from a different angle". Living with diabetes is something these children are confronted with daily from the very moment it is diagnosed, having to live with a restricted diet, insulin therapy and life style changes, facts that bring about feelings that range from fear to insecurity, to revolt, to acceptance and adaptation.

child; diabetes mellitus; life change events


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