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Building a national database of patients receiving dialysis on the Brazilian Unified Health System, 2000-2012

OBJECTIVE:

to describe the procedures employed in constructing a national Unified Health System (SUS) dialysis patients database.

METHODS:

deterministic and probabilistic linking of High Complexity Procedures Authorization (APAC) records 2000-2012 was performed using the Statistical Analysis System (SAS) and the Fine-Grained Record Integration and Linkage Tool (FRIL).

RESULTS:

14,200 APAC files were linked. 38,038,040 records were identified. 17,534 (0,046%) were eliminated as they lacked the Social Security (CPF) or National Health Card (CNS) key variables. 100,432 (0.264%) referring to unrelated cataract operations were also eliminated. Over the period, 351,076 individuals began dialysis treatment on the SUS and 280,667 (79.9%) remained in treatment for >3 consecutive months.

CONCLUSIONS:

the methodology used enabled a SUS dialysis patient monitoring database to be built. It can also be applied for monitoring procedures for other pathologies reimbursed under the APAC data system.

Chronic Renal Insufficiency; Health Information Systems; Data Analysis, Epidemiological Surveillance


Secretaria de Vigilância em Saúde e Ambiente - Ministério da Saúde do Brasil SRTVN Quadra 701, Via W5 Norte, Lote D, Edifício P0700, CEP: 70719-040, +55 61 3315-3464, Fax: +55 61 3315-3464 - Brasília - DF - Brazil
E-mail: ress.svs@gmail.com