Autocuidado apoiado a crianças e adolescentes com doenças crônicas e suas famílias

Fernandes, Leiliane Teixeira Bento; Nóbrega, Vanessa Medeiros da; Silva, Maria Elizabete de Amorim; Machado, Amanda Narciso; Collet, Neusa

doi:10.1590/0034-7167-2016-0553

Acessibilidade / Reportar erro

Brasil

Revista Brasileira de Enfermagem

Español English

Brasil

Español English

sumário « anterior atual seguinte »

Sumário

REVISÃO • Rev. Bras. Enferm. 70 (6) • Nov-Dec 2017 • https://doi.org/10.1590/0034-7167-2016-0553 copiar

Autocuidado apoiado a crianças e adolescentes com doenças crônicas e suas famílias

Autoria SCIMAGO INSTITUTIONS RANKINGS

RESUMO

Objetivo:

analisar a produção científica entre 2006 e 2015 sobre estratégias para o autocuidado apoiado de crianças e adolescentes com doenças crônicas e suas famílias.

Método:

revisão integrativa da literatura realizada entre julho e agosto de 2016 nas bases de dados: BDENF, LILACS, IBECS, ADOLEC, MEDLINE/PubMed e SCIELO. Os 27 estudos selecionados foram analisados e categorizados nos cinco pilares do autocuidado apoiado: avaliação, aconselhamento, acordo, assistência e acompanhamento.

Resultados:

apenas dois estudos abarcaram os cinco pilares, sendo o mais evidenciado a avaliação, porém o acompanhamento se mostrou imprescindível para adesão às terapêuticas do plano de metas. Prevaleceram as ações, avaliação do estado emocional da criança/adolescente/família e intervenções tecnológicas para empoderar o indivíduo no autocuidado.

Considerações finais:

as referidas ações estão concentradas em países com sistemas de saúde direcionados às necessidades de saúde de pessoas com doenças crônicas. No Brasil, isso ainda é incipiente, pois asações estãocentradas em agudizações.

Descritores:
Criança; Adolescente; Família; Doença Crônica; Autocuidado

Base de dados	Encontrados	Excluídos	Selecionados
BDENF/BIREME	00	00	00
IBECS	01	01	00
ADOLEC	01	00	01
LILACS/BIREME	01	01	00
MEDLINE/Pubmed	102	76	26
SciELO	02	02	00
Total	107	80	27

Título	Ano País	Delineamento	Intervenção	Desfecho
Predictors of Health Literacy and Numeracy Concordance Among Adolescents With Special Health Care Needs and Their Parents	2015 EUA	Quantitativo, exploratório N = 278 duplas	Exploração das relações entre a literácia em saúde de adolescentes com necessidades especiais de saúde e seus pais.	Mais de metade das duplas têm pelo menos um membro com literácia em saúde inadequada.
Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study	2015 Canadá	Quanti-qualitativo, Prospectivo de coorte N = 50	Implementação de ferramenta organizacional de estabelecimento de metas de saúde para jovens com doenças crônicas.	Os participantes relataram que as intervenções foram mais úteis para a definição de metas.
Pediatric solid organ transplant recipients: Transition to home and chronic illness care	2015 EUA	Quantitativo, prospectivo, longitudinal N = 51	Avaliação do preparo dos pais para a alta hospitalar.	Pais preparados para deixar o hospital tinham menores dificuldades em lidar com o impacto da doença na família.
Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q	2015 Canadá	Quantitativo N = 369	Desenvolvimento de uma escala de competências de autogestão para uso com adolescentes com doença crônica.	O estudo forneceu evidências de confiabilidade e validade do Transition-Q.
iCanCope with Pain™: User-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs	2014 Canadá	Qualitativo N = 23	Avaliação da necessidade de desenvolvimento de um programa de autogerenciamento on-line sobre dor crônica para adolescentes.	As percepções dos jovens com dor crônica foram cruciais para o desenvolvimento das bases do programa iCanCope.
Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3–5	2014 Reino Unido	Qualitativo, etnográfica N = 12 pais, 28 profissionais de saúde	Discussão sobre as formas como os profissionais de saúde e os pais compartilham conhecimentos em torno do estado da criança.	A etnografia focada foi eficaz na captação de "insights" sobre as interações pais-profissionais em um ambiente pediátrico.
Provider Awareness Alone Does Not Improve Transition Readiness Skills in Adolescent Patients With Inflammatory Bowel Disease	2014 Holanda, EUA e Canadá	Quantitativo N = 415 pacientes	Análise do papel da educação do profissional sobre autogestão e aquisição de habilidades dos pacientes.	Aumento da consciência em torno da aptidão de cuidadores pediátricos sobre o processo de transição.
Medication treatment complexity and adherence in children with CKD	2014 Canadá	Quantitativo, transversal N = 558	Avaliação da complexidade da gestão da Doença Renal Crônica (DRC) em crianças.	Resumo abrangente da adesão ou não por crianças ao uso de medicamentos no tratamento de DRC.
Collaborative Chronic Care Networks (C3Ns) to Transform Chronic Illness Care	2013 EUA	Quantitativo N = não informado	Construção de um protótipo de rede de cuidados em saúde para doentes crônicos.	A C3N^* * Rede colaborativa de cuidados crônicos (C3Ns) tem o potencial para se tornar uma rede de inovação ativa e colaborativa para usuários, familiares, médicos e pesquisadores.
Complementary and alternative medicine use by pediatric specialty outpatients	2013 Canadá	Quantitativo N = 926	Análise sobre o uso de medicina alternativa complementar (CAM) por famílias de crianças/adolescentes com doenças crônicas.	Os resultados deste estudo indicam que o uso CAM é elevado entre pacientes ambulatoriais de clínica pediátrica.
Variables associated with the use of dental services among preschool population in Spain: a national health survey analysis	2012 Espanha	Quantitativo, transversal N = 2172	Análise da prevalência de uso de serviços de saúde bucal por pré-escolares.	O uso de serviços odontológicos está abaixo da média em pré-escolares.
Exercise training in juvenile dermatomyositis	2012 Brasil	Quantitativo, prospectivo, longitudinal N = 10	Investigação sobre os efeitos de um programa de exercício físico em pacientes com dermatomiosite juvenil leve e crônica.	O programa de exercícios mostrou resultado significativo na qualidade de vida dos pacientes.
Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department	2012 Canadá	Quantitativo N = 80	Validação de ilustrações para serem incorporadas em um plano de ação de autogestão da asma.	Foram validadas 15 ilustrações sobre níveis de controle e gatilhos comuns de asma para material educativo.
Factors Associated With Parental Activation in Pediatric Hematopoietic Stem Cell Transplant	2012 EUA	Quantitativo N = 198 duplas	Análise dos fatores associados ao protagonismo de mães em relação à saúde da criança na díade mãe-filho antes de transplante.	O modelo identificou o protagonismo eficaz das mães em relação à autoeficácia e parentalidade.
Evaluating Treatment Participation in an Internet-Based Behavioral Intervention for Pediatric Chronic Pain	2012 EUA	Quantitativo, randomizado controlado N = 26 duplas	Participação de famílias de adolescentes com dor crônica em uma intervenção de gestão comportamental da dor.	A maioria das famílias participou ativamente da intervenção e interagiu com o treinador on-line para gestão da doença.
Paediatric parenting stress in inflammatory bowel disease: application of the Pediatric Inventory for Parents	2012 EUA	Quantitativo N = 62	Análise do estresse parental e identificação de seus fatores associados em pais de pacientes com doença inflamatória intestinal.	Cuidadores de adolescentes recebendo atendimento ambulatorial ou em fase inativa da doença apresentaram baixas taxas de estresse parental.
Cognitive-behavioral treatment of persistent functional somatic complaints and pediatric anxiety: an initial controlled trial	2011 EUA	Quantitativo, piloto controlado N = 40	Teste da viabilidade e eficácia de uma intervenção cognitivo-comportamental para dor entre jovens com ansiedade.	A intervenção apresentou eficácia preliminar e viabilidade para aplicação entre jovens.
Provider Demonstration and Assessment of Child Device Technique During Pediatric Asthma Visits	2011 EUA	Quantitativo N = 41 fornecedores, 296 pacientes	Investigação e descrição sobre o uso de dispositivos para tratamento da asma por crianças.	Déficit dos profissionais de saúde na demonstração e monitoramento das técnicas de uso de dispositivos de tratamento da asma por crianças.
Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial	2011 EUA	Quantitativo, randomizado controlado, piloto N = não informado	Teste da viabilidade de uma intervenção de apoio a adolescentes com dor crônica.	Os resultados da intervenção vão depender do sucesso do programa de formação de monitores que ainda está em desenvolvimento.
Socio-economic factors and outcomes in chronic lung disease of prematurity	2011 EUA	Quantitativo N = 135	Avaliação da interferência de fatores econômicos no uso de medicação de alívio em crianças com doença pulmonar da prematuridade.	Indivíduos não brancos eram mais propensos a usar medicação de alívio do que os brancos.
Living Profiles: Design of a health media platform for teens with special healthcare needs	2010 EUA	Quantitativo N = não informado	Projeto amplo de uma plataforma de mídia de saúde para adolescentes com necessidades especiais de saúde.	Introduziu o conceito de uma plataforma de mídia de saúde para ajudar a gestão do bem-estar de adolescentes com necessidades especiais de saúde.
Health Professionals' Attitudes Towards Using a Web 2.0 Portal for Child and Adolescent Diabetes Care: Qualitative Study	2009 Suécia	Qualitativo N = 20	Exploração das atitudes dos profissionais pediátricos com a introdução de um site para uso de pacientes com Diabetes tipo 1.	Os profissionais pediátricos relataram uma série de atitudes positivas em relação à introdução de um site em suas práticas clínicas.
Objective versus Subjective Assessment of Oral Medication Adherence in Pediatric Inflammatory Bowel Disease	2009 EUA	Quantitativo N = 42	Exame da prevalência e frequência de falta de adesão à medicação oral em adolescentes com doença inflamatória intestinal.	A prevalência de não aderência à medicação não é diferente de populações com outras doenças crônicas pediátricas, e a frequência das doses perdidas pelos pacientes é 40% -50%.
Small steps to health: building sustainable partnerships in pediatric obesity care	2009 EUA	Quantitativo N = 9 clínicas	Projeto de melhoria da qualidade de vida em crianças que convivem com a obesidade pediátrica.	O modelo pode ser aplicável em outros locais para desenvolver programas de melhoria da qualidade de vida em crianças obesas.
Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): The CALI-21	2008 EUA	Quantitativo, exploratório N = 155	Validação, consistência interna e confiabilidade do questionário CALI-21 em crianças e adolescentes com dor crônica.	O CALI-21 mostrou boa consistência interna, confiabilidade elevada e validade de construto.
Internet Telehealth for Pediatric Asthma Case Management: Integrating Computerized and Case Manager Features for Tailoring a Web-Based Asthma Education Program	2007 EUA	Quantitativo N = não informado	Descrição de um sistema de asma eHealth integrado com telefone mensal para gestão de casos de asma.	Desenvolvimento de um web site por médicos, pesquisadores, designers e pais para ajudar os pais a controlar a asma de seus filhos.
A multi-method assessment of treatment adherence for children with cystic fibrosis	2006 EUA	Quantitativo N = 37	Documentação das taxas de adesão aos regimes médicos para crianças com fibrose cística usando quatro métodos de medição.	A medição forneceu informações exclusivas sobre as taxas de adesão por tipo de componente de tratamento.

Metodologia dos 5 As
Avaliação
Avaliar o conhecimento da criança/adolescente e/ou da família sobre a condição de saúde⁽¹⁸18 Chisolm DJ, Sarkar M, Kelleher KJ, Sanders LM. Predictors of health literacy and numeracy concordance among adolescents with special health care needs and their parents. J Health Commun[Internet]. 2015 [cited 2016 Jul 31];20(Suppl2):S43-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4699417/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²⁰20 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Perguntar à criança/adolescente e/ou à família sua opinião sobre as estratégias para o autocuidado⁽¹⁹19 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ⁾
Perguntar à criança/adolescente e/ou à família quais são as barreiras para o autocuidado⁽²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,²³23 Palermo TM, Lewandowski AS, Long AC, Burant CJ. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain[Internet]. 2008 [cited 2016 Jul 31];139(3):644-52. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3166250/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Avaliar a importância e o grau de confiança da criança/adolescente e/ou da família para o autocuidado⁽¹⁹19 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Avaliar a adesão da criança/adolescente e/ou da família em atividades presentes no plano de autocuidado⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²⁴24 Blydt-Hansen TD, Pierce CB, Cai Y, Samsonov D, Massengill S, Moxey-Mims M, et al. Medication treatment complexity and adherence in children with CKD. Clin J Am Soc Nephrol [Internet]. 2014 [cited 2016 Jul 31];9(2):247-54. Available From: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3913241/ https://www.ncbi.nlm.nih.gov/pmc/article... 25 Pennarola BW, Rodday AM, Mayer DK, Ratichek SJ, Davies SM, Syrjala KL, et al. Factors associated with parental activation in pediatric hematopoietic stem cell transplant. Med Care Res Rev[Internet]. 2012 [cited 2016 Jul 31];69(2):194-214. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4160822/ https://www.ncbi.nlm.nih.gov/pmc/article... 26 Lapresa LB, Sanz-Barbero B. Variables associated with the use of dental services among preschool population in spain: a national health survey analysis. Rev Esp Salud Publica[Internet]. 2012 [cited 2016 Jul 31];86(1):115-24. Available from: http://www.msssi.gob.es/bibliopublic/publicaciones/recursos_propios/resp/revista_cdrom/vol86/vol86_1/rs861c_115.pdf http://www.msssi.gob.es/bibliopublic/pub... 27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... 28 Hommel KA, Davis CM, Baldassano RN. Objective versus subjective assessment of oral medication adherence in pediatric. Inflamm Bowel Dis[Internet]. 2009 [cited 2016 Jul 31];15(4):589-93. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2663377/ https://www.ncbi.nlm.nih.gov/pmc/article... ^-²⁹29 Modi AC, Lim CS, Yu N, Geller D, Wagner MH, Quittner AL. A multi-method assessment of treatment adherence for children with Cystic Fibrosis. J Cyst Fibros[Internet]. 2006 [cited 2016 Jul 31];5(3):177-85. Available from: http://www.cysticfibrosisjournal.com/article/s1569-1993(06)00034-8/fulltext http://www.cysticfibrosisjournal.com/art... ⁾
Avaliar a capacidade dos pacientes e/ou família para a realização de uma intervenção⁽¹⁴14 Sleath B, Carpenter DM, Ayala GX, Williams D, Davis S, Tudor G, et al. Communication during pediatric asthma visits and child asthma medication device technique 1 month later. J Asthma [Internet]. 2012 [cited 2016 Jul 31];49(9):918-25. Available from: Http://Www.Tandfonline.Com/Doi/Full/10.3109/02770903.2012.719250?Scroll=Top&Needaccess=True Http://Www.Tandfonline.Com/Doi/Full/10.3... ^,¹⁹19 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁰30 Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, et al. Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant[Internet]. 2015 [cited 2016 Jul 31];19(1):118-29. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4280334/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Conhecer as estratégias utilizadas pela criança/adolescente com doença crônica para reabilitação/enfrentamento ⁽²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,³¹31 Adams D, Dagenais S, Clifford T, Baydala L, King WJ, Hervas-Malo M, et al. Complementary and alternative medicine use by pediatric specialty outpatients. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(2):225-32. Available from: http://pediatrics.aappublications.org/content/pediatrics/early/2013/01/08/peds.2012-1220.full.pdf http://pediatrics.aappublications.org/co... ⁾
Avaliar o estado emocional (depressão, humor, ansiedade, etc.) da criança/adolescente e/ou da família, o qual pode influenciar nas ações de autocuidado⁽¹³13 Warner CM, Colognori D, Kim RE, Reigada LC, Klein RG, Browner-Elhanan KJ, et al. Cognitive-behavioral treatment of persistent functional somatic complaints and pediatric anxiety: an initial controlled trial. Depress Anxiety[Internet]. 2011 [cited 2016 Jul 31];28(7):551-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3128648/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²³23 Palermo TM, Lewandowski AS, Long AC, Burant CJ. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain[Internet]. 2008 [cited 2016 Jul 31];139(3):644-52. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3166250/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁰30 Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, et al. Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant[Internet]. 2015 [cited 2016 Jul 31];19(1):118-29. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4280334/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³²32 Guilfoyle SM, Denson LA, Baldassano RN, Hommel KA. Paediatric parenting stress in Inflammatory Bowel Disease: application of the pediatric inventory for parents. Child Care Health Dev[Internet]. 2012 [cited 2016 Jul 31];38(2):273-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3123674/ https://www.ncbi.nlm.nih.gov/pmc/article... ^-³³33 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3 tp://linkinghub.elsevier.com/retrieve/pi... ⁾
Avaliar o processo de transição de cuidados de saúde (HCT) da assistência pediátrica até os sistemas de prestação de cuidados de saúde centrados no adulto⁽¹⁶16 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,¹⁸18 Chisolm DJ, Sarkar M, Kelleher KJ, Sanders LM. Predictors of health literacy and numeracy concordance among adolescents with special health care needs and their parents. J Health Commun[Internet]. 2015 [cited 2016 Jul 31];20(Suppl2):S43-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4699417/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,³⁴34 Klassen AF, Grant C, Barr R, Brill H, Kraus OC, Ronen GM, et al. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev[Internet]. 2014 [cited 2016 Jul 31];41(4):547-58. Available from: http://onlinelibrary.wiley.com/doi/10.1111/cch.12207/pdf http://onlinelibrary.wiley.com/doi/10.11... ^-³⁵35 Fishman LN, Ziniel SI, Adrichem ME, Fernandes SM, Arnold J. Provider awareness alone does not improve transition readiness skills in adolescent patients with Inflammatory Bowel Disease. J Pediatr Gastroenterol Nutr[Internet]. 2014 [cited 2016 Jul 31];59(2):221-4. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24762453/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Aconselhamento
Informar à criança/adolescente e/ou à família sobre os sintomas da doença e/ou medidas terapêuticas⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²⁷27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁶36 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾, reconhecendo a singularidade cultural⁽¹⁹19 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Informar à criança/adolescente e/ou à família que as mudanças comportamentais são tão importantes quanto tomar os medicamentos⁽²⁰20 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Informar quais são as evidências sobre as mudanças de comportamento na saúde⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Compartilhar as diretrizes clínicas baseadas em evidências para encorajar a criança/adolescente e/ou a família a participarem do tratamento⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁵35 Fishman LN, Ziniel SI, Adrichem ME, Fernandes SM, Arnold J. Provider awareness alone does not improve transition readiness skills in adolescent patients with Inflammatory Bowel Disease. J Pediatr Gastroenterol Nutr[Internet]. 2014 [cited 2016 Jul 31];59(2):221-4. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24762453/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Fornecer material educativo sobre autogerenciamento⁽¹⁶16 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,²⁰20 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²⁷27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁶36 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/ https://www.ncbi.nlm.nih.gov/pmc/article... ^-³⁷37 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Incluir estratégias motivacionais⁽¹⁵15 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long http://pediatrics.aappublications.org/co... ⁾
Acordo
Prover possíveis opções para a definição da meta de autocuidado⁽¹⁶16 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^-¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ⁾
Estimular a criança/adolescente a buscar a ajuda de parentes e amigos para a definição da meta⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Estabelecer de forma compartilhada estratégias para alcance da meta definida⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Assistência
Encaminhar a criança/adolescente e/ou a família a um grupo ou a um curso sobre autocuidado apoiado (auto gestão)⁽²⁷27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Identificar com a pessoa possíveis recursos existentes na família e na comunidade que possam dar suporte ao autocuidado⁽¹⁵15 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long http://pediatrics.aappublications.org/co... ⁾
Estabelecer um programa de intervenção, com sessões semanais, com o objetivo de melhorar o conhecimento da criança/adolescente e/ou da família e envolvê-los no autocuidado⁽²⁷27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁷37 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/ https://www.ncbi.nlm.nih.gov/pmc/article... ^-³⁸38 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf http://onlinelibrary.wiley.com/doi/10.10... ⁾
Implementar uma intervenção de autocuidado centrada no paciente e/ou sua família⁽²⁰20 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²⁷27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁸38 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf http://onlinelibrary.wiley.com/doi/10.10... ⁾
Promover o trabalho em equipe multiprofissional⁽²⁰20 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁸38 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf http://onlinelibrary.wiley.com/doi/10.10... ⁾
Intervenções com uso de recursos tecnológicos, como telemedicina, realidade virtual e programas computacionais, em variados aspectos da reabilitação⁽⁴4 Margolis PA, Peterson LE, Seid M. Collaborative Chronic Care Networks (C3Ns) to transform chronic illness care. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(Suppl4):S219-23. Available from: http://pediatrics.aappublications.org/content/131/supplement_4/s219.long http://pediatrics.aappublications.org/co... ^,¹⁶16 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^-¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,³³33 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3 tp://linkinghub.elsevier.com/retrieve/pi... ^,³⁶36 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/ https://www.ncbi.nlm.nih.gov/pmc/article... ^-³⁷37 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Acompanhamento
Monitorar, a distância, por telefone ou correio, o plano de autocuidado⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²⁷27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³³33 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3 tp://linkinghub.elsevier.com/retrieve/pi... ^,³⁷37 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾
Interferir para que a pessoa possa utilizar os recursos comunitários importantes no seu autocuidado⁽¹⁵15 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long http://pediatrics.aappublications.org/co... ⁾
Grupo de pares com apoio de profissionais⁽¹⁶16 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^-¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,²⁷27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁸38 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf http://onlinelibrary.wiley.com/doi/10.10... ⁾
Acompanhar a criança/adolescente e/ou a família por meio de questionários que avaliem atividades da vida diária, autocuidado e/ou qualidade de vida de forma contínua⁽³³33 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3 tp://linkinghub.elsevier.com/retrieve/pi... ⁾
Analisar o alcance de metas em conjunto com o paciente⁽³³33 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3 tp://linkinghub.elsevier.com/retrieve/pi... ⁾
Implementar uma intervenção de autocuidado centrada no paciente e/ou sua família⁽¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²⁰20 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,³⁸38 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf http://onlinelibrary.wiley.com/doi/10.10... ⁾
Intervenções utilizando recursos tecnológicos para empoderar o indivíduo nas ações de autocuidado⁽⁴4 Margolis PA, Peterson LE, Seid M. Collaborative Chronic Care Networks (C3Ns) to transform chronic illness care. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(Suppl4):S219-23. Available from: http://pediatrics.aappublications.org/content/131/supplement_4/s219.long http://pediatrics.aappublications.org/co... ^,¹⁶16 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^-¹⁷17 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/ https://www.ncbi.nlm.nih.gov/pmc/article... ^,²¹21 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/ http://www.ncbi.nlm.nih.gov/pmc/articles... ^,³³33 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3 tp://linkinghub.elsevier.com/retrieve/pi... ^,³⁶36 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/ https://www.ncbi.nlm.nih.gov/pmc/article... ^-³⁷37 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/ https://www.ncbi.nlm.nih.gov/pmc/article... ⁾

Associação Brasileira de Enfermagem SGA Norte Quadra 603 Conj. "B" - Av. L2 Norte 70830-102 Brasília, DF, Brasil, Tel.: (55 61) 3226-0653, Fax: (55 61) 3225-4473 - Brasília - DF - Brazil
E-mail: reben@abennacional.org.br

Acompanhe os números deste periódico no seu leitor de RSS

[1] AUTOR CORRESPONDENTE Leiliane Teixeira Bento Fernandes E-mail: leilianeufpb@gmail.com