Scientific production about palliative care and communication in online journals: a scoping review

Andrade, Cristiani Garrido de; Costa, Isabelle Cristinne Pinto; Freire, Maria Eliane Moreira; Dias, Thaina Karoline Costa; França, Jael Rúbia Figueiredo de Sá; Costa, Solange Fátima Geraldo da

doi:10.1590/0034-7167-2019-0378

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REVIEW • Rev. Bras. Enferm. 74 (2) • 2021 • https://doi.org/10.1590/0034-7167-2019-0378 copy

Scientific production about palliative care and communication in online journals: a scoping review

Producción científica acerca de los cuidados paliativos y comunicación en periódicos online: revisión de escopo

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objectives:

to characterize publications about palliative care and communication, with an emphasis on the approaches addressed, disseminated in online journals.

Methods:

it is a scope review, in which the mnemonic strategy Problem, Concept and Context was used, based on database research. The sample consisted of 86 publications.

Results:

most publications were written in the English language, published in the journal BMC Palliative Care, and with level of evidence IV. As for the approaches approached, the following stand out: Importance of communication in palliative care; Breaking the bad news in palliative care; Training professionals/staff to communicate in palliative care; and Communication strategies in palliative care.

Final Considerations:

the review made it possible to map a significant number of publications on palliative care and communication. It is recommended to produce new studies with better scientific evidence that guide the assistance of health professionals.

Descriptors:
Palliative Care; Communication; Hospice Care; Nursing; Scientific

Level and quality of evidence	Sources of Evidence	n	%
1. LEVEL I	Meta-analysis of multiple controlled studies	06	07
2. LEVEL II	Individual randomized controlled experimental study	04	05
3. LEVEL III	Quasi-experimental study as a single group, non-randomized, controlled, with pre and post test, or paired case-control studies	17	20
4. LEVEL IV	Non-experimental study as descriptive correlational research, qualitative research or case study	40	46
5. LEVEL V	Report of cases or data obtained systematically, of verifiable quality, or data from evaluation programs	00	00
6. LEVEL VI	Opinion from respected authorities (such as nationally known authors) based on their clinical experience or the opinion of a committee of experts including their interpretations of information not based on research. Includes opinions from regulatory or legal bodies.	19	22
Total		86	100

FOCUS IMPORTANCE OF COMMUNICATION IN PALLIATIVE CARE. n=29 (33.7%)
A1 The communication experiences of patients with palliative care needs: a systematic review and meta-synthesis of qualitative findings. (Palliat Support Care) A2 Palliative nursing care in the elderly in UCI: an integrative review. (Rev. Pesqui. -Univ. Fed. Estado Rio J., Online) A3 Improving end-of-life communication and decision making: the development of a conceptual framework and quality indicators. (J Pain Symptom Manage) A4 "Save the Elderly!": Care Report in Health Psychology and Palliative Care. (Psicol. ciênc. prof.) A5 Validation of a model of family caregiver communication types and related caregiver outcomes. (Palliat Support Care) A6 Family communication and decision making at the end of life: a literature review. (Palliat Support Care) A7 Palliative Care and Curriculum Guidelines: Necessary Inclusion. (Rev. bras. educ. méd.) A8 Barriers associated with palliative care in dementia: a review of the literature. (Geriatr., Gerontol. Aging) A9 Main Caregivers Facing Death Experience and Its Meanings. (Psicol. ciênc. prof.) A10 Clinical and laboratory characteristics associated with referral of hospitalized elderly to palliative care. (Einstein - São Paulo) A11 Nursing and spiritual needs in the terminal patient. (Enfermería: Cuidados Humanizados) A12 Patient's rights to advance directives. (Rev. bioét.) A13 The importance of communication in sustaining hope at the end of life. (Br J Nurs.) A14 From one side to the other: what is essential? Perception of oncology patients and their caregivers in the beginning of oncology treatment and in palliative care. (Einstein - São Paulo) A15 Palliative care to the elderly in intensive care: the perspective of the nursing team. (Texto & contexto enferm.) A16 Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study. (BMC Palliat Care) A17 Communication during palliative care and end of life: perceptions of experienced pediatric oncology nurses. (Cancer Nurs.) A18 Meaning of palliative care by the multiprofessional team of the intensive care unit. (Rev enferm UFPE on line.)
A19 Palliative care: nurses vision of a teaching hospital. (Enferm. Foco) A20 The importance of palliative care provided by the nurse for children with cancer in terminal phase. (Rev. Pesqui. -Univ. Fed. Estado Rio J., Online) A21 Care to terminal patients. Perception of nurses from the intensive care unit of a hospital. (Invest. educ. enferm.) A22 Palliative care in primary health care: ethical considerations. (Rev. bioét.) A23 Nursing professional communication with the family of the terminal patient. (Enferm. univ.) A24 Patterns of interactions among patients with advanced pancreatic cancer, their caregivers, and healthcare providers during symptom discussions. (Support Care Cancer) A25 A longitudinal communication approach in advanced lung cancer: A qualitative study of patients', relatives' and staff's perspectives. (Eur J Cancer Care). A26 Communication and quality of care on palliative care units: a qualitative study. (J Palliat Med.) A27 Communication and swallowing difficulties in palliative patients: patients, families and/or caregivers perspective. (Audiol., Commun. res.) A28 Palliative care seen from the point of view of the lung cancer patients' families. (Interface - Botucatu, Online) A29 Proposal of Speech-Language Pathology activities in Palliative Care in hospitalized oncology patients. (Distúrb Comun.)
FOCUS BREAKING THE BAD NEWS IN PALLIATIVE CARE. n=26 (30.2%)
B1 'I can't tell my child they are dying'. Helping parents have conversations with their child. (Education and Practice) B2 Declining oral intake towards the end of life: how to talk about it? A qualitative study. (Int J Palliat Nurs.) B3 Mismatch between physicians and family members views on communications about patients with chronic incurable diseases receiving care in critical and intensive care settings in Georgia: a quantitative observational survey. (BMC Palliat Care) B4 Patients' preferences for information about the benefits and risks of second-line palliative chemotherapy and their oncologist's awareness of these preferences. (J Cancer Educ.) B5 Breaking bad news about transitions to dying: a qualitative exploration of the role of the District Nurse. (Palliat Med.) B6 Communication about the impending death of patients with cancer to the family: a nationwide survey. (BMJ Support Palliat Care) B7 Discussing serious news: teaching communication skills through role play with bereaved parents. (Am. j. hosp. palliat. care.) B8 How long do I have? Observational study on communication about life expectancy with advanced cancer patients. (Patient Educ Couns) B9 ICU bedside nurses' involvement in palliative care communication: a multicenter survey. (J Pain Symptom Manage) B10 Reframing the goals of care conversation: "we're in a different place". (J Palliat Med.) B11 Children and adolescents with cancer under palliative care: experience of family members. (REBEn) B12 Communicating bad news: an integrative review of the nursing literature. (REBEn) B13 End-of-Life Paradigm in Medical Training: Attitudes and Knowledge about Death and Palliative Care. (Rev. bras. educ. méd.) B14 Interpersonal communication with oncological patients in palliative. (Rev baiana enferm.) B15 Clinical and laboratory characteristics associated with referral of hospitalized elderly to palliative care. (Einstein - São Paulo) B16 Palliative care consultation in an intensive care unit. (Arq. Catarin Med.) B17 Ethical problems identified by nurses in relation to patients in critical condition. (Rev. bioét.) B18 The doctor-family relation when facing terminality in ICU. (Psicol. argum.) B19 Optimistic perspectives in communicating difficult news on fetal development. (Cad. saúde pública) B20 A systematic review of end-of-life care communication skills training for generalist palliative care providers: research quality and reporting guidance. (J Pain Symptom Manage) B21 The doctor-patient relationship and information-seeking behavior: four orientations to cancer communication. (J Palliat Care)
B22 Communication behaviors and patient and caregiver emotional concerns: a description of home hospice communication. (Oncol Nurs Forum) B23 Communication in heart failure and palliative care. (Heart Fail Rev.) B24 Communicating reserved prognosis to child patients. (Rev. bioét.) B25 Nursing support of home hospice caregivers on the day of cancer patient death. (Oncol Nurs Forum.) B26 Social representation of nurses on palliative care. (Rev. cuid.)
FOCUS TRAINING PROFESSIONALS/STAFF FOR COMMUNICATION IN PALLIATIVE CARE. n=16 (18.6%)
C1 Communication in palliative care: the applicability of the SAGE and THYME model in Singapore. (Int J Palliat Nurs.) C2 The entry-level physical therapist: a case for comfort communication training. (Health Commun.) C3 Self-assessment scores improve after simulation-based palliative care communication skill workshops. (Am J Hosp Palliat Care.) C4 Are future medical oncologists sufficiently trained to communicate about palliative care? The medical oncology curriculum in Flanders, Belgium. (Acta Clin Belg.) C5 Palliative care communication in the icu: implications for an oncology-critical care nursing partnership. (Semin Oncol Nurs.) C6 The effect of communication skills training for generalist palliative care providers on patient-reported outcomes and clinician behaviors: a systematic review and meta-analysis. (J Pain Symptom Manage) C7 Assessment of an interprofessional online curriculum for palliative care communication training. (J Palliat Med.) C8 Challenges to the Integrality of Assistance in Palliative Care in the Pediatric Ward of the National Cancer Institute José Alencar Gomes da Silva. (Rev. bras. cancerol.) C9 'Difficult Conversations': evaluation of multiprofessional training. (BMJ Support Palliat Care) C10 The effectiveness of communication-skills training interventions in end-of-life noncancer care in acute hospital-based services: A systematic review. (Palliat Support Care) C11 Palliative Care: Importance of the Subject for Medical Students. (Rev. bras. educ. méd.) C12 Educational intervention in the nursing team beyond palliative care. (J. Health Biol. Sci.) C13 Barriers and facilitators to end-of-life communication in advanced chronic organ failure. (Int J Palliat Nurs.) C14 The effectiveness of the Geritalk communication skills course: a real-time assessment of skill acquisition and deliberate practice. (J Pain Symptom Manage) C15 The use of simulation to teach nursing students and clinicians palliative care and end-of-life communication: a systematic review. (Am J Hosp Palliat Care) C16 Improving communication with palliative care cancer patients at home - A pilot study of SAGE & THYME communication skills model. (Eur J Oncol Nurs.)
FOCUS COMMUNICATION STRATEGIES IN PALLIATIVE CARE. n=15 (17.4%)
D1 Striving for a balance between leading and following the patient and family - nurses' strategies to facilitate the transition from life-prolonging care to palliative care: an interview study. (BMC Palliat Care) D2 What is the evidence for conducting palliative care family meetings? A systematic review. (Palliat Med.) D3 Keep in Touch (KIT): feasibility of using internet-based communication and information technology in palliative care. (BMC Palliative Care) D4 The grim reaper, hounds of hell, and dr. death: the role of storytelling for palliative care in competing medical meaning systems. (Health Commun) D5 Keep in touch (KIT): perspectives on introducing internet-based communication and information technologies in palliative care. (BMC Palliat Care) D6 Communication about existential issues with patients close to death--nurses' reflections on content, process and meaning. (Psychooncology)
D7 A qualitative analysis of responses to a question prompt list and prognosis and end-of-life care discussion prompts delivered in a communication support program. (Psychooncology) D8 Talking about sensitive topics during the advance care planning discussion: a peek into the black box. (Palliat Support Care) D9 The troubles of telling: managing communication about the end of life. (Qual Health Res.) D10 A comprehensive review on palliative care. (Acta Medica) D11 Palliative care and communication: study with health professionals of the home care service. (Rev. Pesqui. -Univ. Fed. Estado Rio J., Online) D12 Use of communication strategies in palliative care in brazil: Integrative review. (Cogitare Enferm.) D13 Communication in the transition to palliative care: review article. (Rev. bras. educ. méd.) D14 Ethical issues related to patient preferences in palliative care. (Rev. bioét.) D15 Communication in palliative care: an integrative literature review. (Rev. bras. ciênc. saúde.)

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[1] Corresponding author: Cristiani Garrido de Andrade. E-mail: cristiani_garrido@hotmail.com