The Informal Caregiver Burden Assessment Questionnaire: validation for Brazil

Monteiro, Edilene Araújo; Mazin, Suleimy Cristina; Dantas, Rosana Aparecida Spadoti

doi:10.1590/0034-7167.2015680307i

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RESEARCH • Rev Bras Enferm 68 (3) • June 2015 • https://doi.org/10.1590/0034-7167.2015680307i copy

The Informal Caregiver Burden Assessment Questionnaire: validation for Brazil

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objectives:

to analyze the dimensionality, convergent construct validity and internal consistency of the Informal Caregiver Burden Assessment Questionnaire (QASCI) after its semantic adaptation to Brazil.

Method:

this methodological study was developed with 132 informal caregivers of elders who are dependent of help for basic or instrumental activities of daily living, in a capital city in Northeast Brazil. Quality of life measures related to health, anxiety and depression were used in the analysis of the convergent construct validity of the QASCI.

Results:

the results of the instrument construct validation evidenced statistically signifi cant correlations with the three measures. The confi rmatory factor analysis evidenced good adjustment of the theoretical model of seven factors (domains) of the version used in the group studied. Cronbach’s alpha for the scale total was 0.92.

Conclusion:

the Brazilian version of the QASCI was considered to be valid and reliable for assessing the burden of informal elder caregivers.

Key words:
Nursing Methodology Research; Validation Studies; Caregivers; Elders; Geriatric Nursing

QASCI Items	No / Never	Rarely	Sometimes	Almost always	Always
QASCI Items	%	%	%	%	%
1. Do you feel like getting out of the situation you are in?	45.5	9.1	30.3	6.8	8.3
2. Do you consider that taking care of your relative is psychologically difficult?	32.6	9.8	31.8	11.4	14.4
3. Do you feel tired and exhausted of taking care of your relative?	38.6	9.8	31.8	8.3	11.4
4. Do you conflict with yourself for taking care of your relative?	51.5	15.2	22.7	6.1	4.5
5. Do you think your health has worsened for taking care of your relative?	59.8	8.3	17.4	8.3	6.1
6. Is taking care of your relative requiring great physical effort?	30.3	15.9	26.5	7.6	19.7
7. Do you feel like you have lost control of your life since your relative got sick?	6.8	9.1	18.9	4.5	10.6
8. Have the plans you made for this stage of life changed for taking care of your relative?	41.7	9.8	28.8	6.1	13.6
9. Do you think you devote much time taking care of your relative and that your time is not enough for you?	37.1	13.6	28.8	9.8	10.6
10. Do you feel like life has played a trick on you?	54.5	6.1	13.6	9.8	15.9
11. Is it difficult to plan for the future since the needs of your relative are unpredictable?	28.0	6.1	36.4	8.3	21.2
12. Does taking care of your relative make you feel like being stuck?	34.8	8.3	25.8	9.8	21.2
13. Do you avoid inviting friends to your home because of your relative's problems?	64.4	4.5	12.9	3.8	14.4
14. Has your social life (e.g., vacations, socializing with family and friends) been hampered for taking care of your relative?	43.2	8.3	31.1	5.3	12.1
15. Do you feel lonely and isolated for taking care of your relative?	63.6	7.6	11.4	4.5	12.9
16. Are you experiencing economic (financial) difficulties for taking care of your relative?	55.3	6.1	28.8	2.3	7.6
17. Do you feel like your economic (financial) future is uncertain for taking care of your relative?	59.1	6.1	25.0	1.5	8.3
18. Have you ever felt offended and angry due to your relative's behavior?	40.2	10.6	28.8	10.6	9.8
19. Have you ever felt ashamed due to your relative's behavior?	72.7	5.3	13.6	6.1	2.3
20. Do you feel like your relative often requests your help for unnecessary situations?	51.5	9.8	18.2	8.3	12.1
21. Do you feel manipulated (used) by your relative?	73.5	4.5	11.4	3.0	7.6
22. Do you feel like you do not have as much privacy as you like for taking care of your relative?	52.3	7.6	21.2	6.8	12.1
23. Can you do most activities you need despite the time you spend taking care of your relative?	9.8	10.6	14.4	27.3	37.9
24. Do you feel able to continue taking care of your relative for much longer?	3.0	3.0	12.9	10.6	70.5
25. Do you think you have knowledge and experience enough to take care of your relative?	3.0	4.5	10.6	17.4	64.4
26. Do your family members (relatives that do not live with you) value your work of taking care of your relative?	17.4	10.6	13.6	12.1	46.2
27. Do you feel supported by your relatives?	9.8	11.4	16.7	17.4	44.7
28. Does it feel good to take care of your relative?	0.0	1.5	12.1	10.6	75.8
29. Does your relative show gratitude for what you are doing for him/her?	11.4	7.6	18.9	7.6	54.5
30. Do you feel satisfied when your relative feels glad about little things you do to him/ her (such as attention, affection and small gifts)?	0.8	3.0	5.3	9.1	81.8
31. Do you feel closer to your relative for taking care of him/her?	0.8	1.5	3.8	9.1	84.8
32. Has taking care of your relative increased your self-esteem, making you feel like a special person with greater value?	2.3	3.0	13.6	18.2	62.9

Domínios QASCI (nº de itens, intervalo possível)	Alfa de Cronbach	Intervalo obtido	Mediana	Média (Desvio-padrão)
QASCI total score (32 items, 32 to 160)	0.92	32 - 131	65.0	66.8 (22.86)
Emotional burden (4 items, 4 to 20)	0.80	4 - 20	9.0	9.29 (4.21)
Implications for personal life (11 items, 11 to 55)	0.88	11 - 54	23.5	25.68 (10.86)
Financial burden (2 items, 2 to 10)	0.59	2 - 10	3.5	3.94 (2.16)
Reactions to demands (5 items, 5 to 25)	0.76	5 - 22	9.0	10.04 (4.73)
Perception of effectiveness and control mechanisms (3 items, 3 to 15)	0.51	3 - 12	5.0	5.49 (2.44)
Family support (2 items, 2 to 10)	0.80	2 - 10	4.0	4.65 (2.69)
Satisfaction with the role and the relative (5 items, 5 to 25)	0.76	5 - 20	7.0	7.72 (3.46)

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[1] CORRESPONDING AUTHOR: Edilene Araújo Monteiro. E-mail: edileneam06@gmail.com