35) How is the referral system for preterm infant care?
(1) There is no referral; (2) Slow referral system, with long lines; (3) Referral system prioritizes the care of preterm infants; (4) Agile referral system and information exchange between health care spheres |
36) How is the counter-referral to preterm infant care?
(1) Does not exist; (2) Exists, but it is incipient and dependent on the attitude of each professional; (3) Exists, but bureaucratized, with little feedback for the basic network; (4) Is integrated and with exchanges of information between the spheres of care |
37) Is preterm infants’ health and illness history used?
(1) Caregivers need to tell the history to each new professional; (2) There is a description of the problem and demands in the referral; (3) A detailed written report prepared; (4) There is electronic medical record integrated in the network |
38) Is there integration between health unit and educational institution that preterm infants attend?
(1) There is not; (2) Only when there is a problem with the infant at school; (3) They know the school of infants with physical and behavioral changes; (4) There is integration with the school with updated information in the medical record |
39) Are there strategies for monitoring preterm infants among health and education services?
(1) There is not; (2) For infants diagnosed with developmental delay; (3) When developmental delay is detected; (4) There is integration and joint strategies are developed to stimulate the development of preterm infants |
40) Are there meetings to discuss cases and instrumentalize education professionals about preterm infants?
(1) There is not; (2) There is exchange of information in urgent situations; (3) There is exchange of information on physical and behavioral changes; (4) Information is shared and training is carried out for education professionals |
41) In an acute situation, does the family know which service to look for?
(1) I cannot inform; (2) I do not know which service to seek; (3) They seek the Emergency Care Unit; (4) Families know which health services are available for preterm infant care |
42) If the family needs psychological care, is the service available and do the families know about it?
(1) I cannot inform; (2) There is no psychology service available; (3) He has the psychology service, but families do not seek it; (4) Psychology service is available and families know it |
43) Are preterm infants at risk for late complications stratified?
(1) Not performed; (2) Treatment and follow-up is directed only at the diagnosis of complications; (3) Risk stratification is performed and there are long queues for specialized care; (4) Risk stratification is carried out and there are adequate referrals for the necessary care, in a timely manner |
44) Are there protocols for ophthalmologic assessment of preterm infants?
(1) Not performed; (2) All preterm infants are placed in the waiting list for ophthalmologic assessment; (3) Referral at first infant care visit (weight ≤2,000 g and/or gestational age <32 weeks); (4) At hospital discharge, ophthalmologic assessment is scheduled (birth weight ≤2,000 g and/or gestational age <32 weeks) |
45) How is the progress of ophthalmologic assessment of infants with birth weight ≤2,000 g and/or gestational age <32 weeks?
(1) Only with diagnosis of visual alterations; (2) Waiting queue, minimum one year waiting period; (3) Queuing, usually in the infant’s first months; (4) About 15 days after discharge, assessment takes place (screening - strabismus, nystagmus and refractive errors) |
46) Are there protocols for neurological and/or cardiological assessment of preterm infants?
(1) Not performed; (2) Referral if there is a diagnosis of neurological and/or cardiological alterations; (3) All preterm babies are on the waiting list; (4) Transfontanellar echo and/or echocardiogram were performed during infant hospitalization and, if there are any changes, they are discharged with referral to specialties |
47) How is the neurological and/or cardiological assessment of preterm infants progressing?
(1) Only with diagnosis of alterations; (2) Queue, usually with more than a year of waiting; (3) Waiting queue, usually up to one year of waiting; (4) It is performed approximately three months after hospital discharge |
48) Are there protocols for behavioral assessment of preterm infants?
(1) Not performed; (2) Assessment carried out only based on professional perception in attendance; (3) Assessment performed based on the multidisciplinary team’s perception; (4) Assessment carried out based on family’s, health and education professionals’ perception |
49) Is there an assessment of infant psychology for preterm infants?
(1) Does not know if this service exists; (2) There is no such service; (3) For infants with alterations, these are placed on the waiting list; (4) All infants receive a first-year assessment to screen for problems |
50) Are there protocols for psychomotor assessment of preterm infants?
(1) Only with diagnosis of alterations; (2) There is a waiting list to be assessed by a physical therapist; (3) Physiotherapy assessment in the first year and, if changes, enter the waiting list to start care; (4) Physiotherapy assessment in the first year of life and, if changes, care is initiated |
51) How is the progress to attend to preterm infants in case they need orthosis or prosthesis?
(1) Not provided; (2) Forwarded to specialized service and process is slow; (3) Forwarded to specialized service and takes less than three months; (4) Forwarded to specialized service and takes less than 30 days |
52) How is the progress for the speech-language pathology assessment of hearing screening of preterm infants?
(1) Does not know if such assessment exists; (2) There is no such assessment in the health care network; (3) There is a queue and service is slow; (4) There is preventive assessment in the first year of life |
53) Is there integration between health unit and educational and research institution?
(1) There is no integration; (2) They only receive undergraduate students for internships in infant health; (3) They receive undergraduate/graduate students for internships and their research in infant health; (4) They receive undergraduate/graduate students/researchers for internships, research and integration of knowledge |
