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Study of Burden Among Caregivers of Children with Cleft Lip and Palate 1 1 Paper derived from the doctoral dissertation by the first author, under the advice of the last author, defended in the Graduate Program in Rehabilitation Sciences of the Hospital for Rehabilitation of Craniofacial Anomalies at the University of São Paulo. Support: Foundation for Research Support of the State of São Paulo (FAPESP, Grant # nº 2012/18085-0).

Estudo da Sobrecarga em Cuidadores de Crianças com Fissura Labiopalatina

Investigación de la Sobrecarga en los Cuidadores de Niños con Fisura Labiopalatina

Abstract:

The psychological and physical health of caregivers of children with cleft lip and palate can be strongly influenced by the child’s condition and behavior, and care required by the treatment. This study’s objective was to identify overload levels among these caregivers. A total of 100 caregivers, whose children were in the perioperative period of cheiloplasty and/or palatoplasty, were interviewed using the Scale Burden Interview. The data were analyzed quantitatively. Moderate and moderate severe burden levels were identified in 43% of the sample. The mothers of children aged around 12 months presented significantly higher overload. The results indicate that children in this developmental stage present greater care demand because they seek autonomy in locomotion, explore objects in their surrounding environment, and continually request communicative and affective-social interaction with their reference to greater attachment (the caregiver), which may have contributed to higher burden.

Keywords:
caregivers; family relations; children; cleft lip; cleft palate

Universidade de São Paulo, Faculdade de Filosofia Ciências e Letras de Ribeirão Preto, Programa de Pós-Graduação em Psicologia Av.Bandeirantes 3900 - Monte Alegre, 14040-901 Ribeirão Preto - São Paulo - Brasil, Tel.: (55 16) 3315-3829 - Ribeirão Preto - SP - Brazil
E-mail: paideia@usp.br