Acessibilidade / Reportar erro

Babies with Down syndrome and their parents: new proposals for intervention

The goal of this investigation was to study the concepts of both parents and professionals regarding the communication of Down syndrome diagnosis in maternities, and to evaluate the early stimulation device. Six mothers, one father, and eight professionals were interviewed. From the five categories emerged in the content analysis of interviews, we emphasize two of them to present in this work: the communication moment and early stimulation. We noticed that parents feel poorly assisted in maternities, as well as poorly included in early stimulation procedures with their babies. In addition, we found out that professionals in birth centers - who communicate the diagnosis to parents - and therapists who conduct the baby's early stimulation do not generally consider the relational aspects among the members of the group parents-baby-professionals as part of their work. We present an innovative proposal of alternative forms of assistance that include the bonding aspects in clinical devices.

Early intervention; Parent child relation; Down syndrome


Programa de Pós-Graduação em Psicologia, Pontifícia Universidade Católica de Campinas Núcleo de Editoração SBI - Campus II, Av. John Boyd Dunlop, s/n. Prédio de Odontologia, 13060-900 Campinas - São Paulo Brasil, Tel./Fax: +55 19 3343-7223 - Campinas - SP - Brazil
E-mail: psychologicalstudies@puc-campinas.edu.br