SPECIALIZED NURSING TERMINOLOGY FOR THE CARE OF CHILDREN AND ADOLESCENTS WITH EPIDERMOLYSIS BULLOSA

Araujo, Bruno Gonçalo Souza de; Dantas, Ana Márcia Nóbrega; Beserra, Patrícia Josefa Fernandes; Silva, Kenya de Lima

doi:10.1590/ce.v28i0.91679

Acessibilidade / Reportar erro

Brasil

Español English

sumário « anterior atual seguinte »

Sumário

ORIGINAL ARTICLE • Cogit. Enferm. 28 • 2023 • https://doi.org/10.1590/ce.v28i0.91679 copy

SPECIALIZED NURSING TERMINOLOGY FOR THE CARE OF CHILDREN AND ADOLESCENTS WITH EPIDERMOLYSIS BULLOSA^* * Article extracted from the master’s/PhD thesis “Diagnósticos, Resultados e Intervenções de Enfermagem em crianças e adolescentes com epidermólise bolhosa”, Universidade Federal da Paraíba, João Pessoa, PB, Brasil, 2022.

Authorship SCIMAGO INSTITUTIONS RANKINGS

HIGHLIGHTS

Contribute to the effectiveness of child and adolescent care.
The standardization of nursing language for practice and research.
Collaborates with the progress of the Classification System.
ICNP^® specialist terminology for people with epidermolysis bullosa.

ABSTRACT

Objective:

To build a specialized nursing terminology for the care of children and adolescents with epidermolysis bullosa.

Method:

Methodological, documentary study, built between the months of January to December 2021, in partnership with the ICNP^® Center, in João Pessoa - Brazil. Data were analyzed using the PorOnto tool and the following theoretical methodological references: the International Classification for Nursing Practice 2019/2020, and human mapping following ISO/TR 12300:2016 and the term validation method.

Results:

The validation process with judges resulted in 480 terms for children and adolescents with epidermolysis bullosa, which were submitted to mapping, resulting in 207 constant ICNP^® terms and 273 non-constant ICNP^® terms.

Conclusion:

a higher number of non-constant terms is evidenced, which can be justified by the peculiarity of the disease and specific care with children and adolescents. The construction of terminology strengthens the development of diagnoses, outcomes, and nursing intervention.

DESCRIPTORS:
Nursing; Standardized Nursing Terminology; Child; Adolescent; Epidermolysis Bullosa

Universidade Federal do Paraná Av. Prefeito Lothário Meissner, 632, Cep: 80210-170, Brasil - Paraná / Curitiba, Tel: +55 (41) 3361-3755 - Curitiba - PR - Brazil
E-mail: cogitare@ufpr.br

Acompanhe os números deste periódico no seu leitor de RSS

[1] Corresponding author: Bruno Gonçalo Souza de Araujo Universidade Federal da Paraíba Rua Coronel Antônio de Farias, 344 José Américo de Almeida, João Pessoa, PB, Brasil E-mail: brunogsda@gmail.com

E	Constant Terms
F	Agitation; Adherence; Adherence to dietary regimen; Water; Breastfeeding; Range of Motion; Anxiety; Family support; Aspiration; Self-control; Autonomy; Self-care; Skin self-care; Allergy; Family support; Aspiration; Ability to bathe; Wound healing; Complication; Psychological condition; Confusion; Knowledge; Knowledge of family; Knowledge about disease process; Awareness; Oral (or Oral) condition; Psychological condition; Bowel condition Constipation; Pain control; Guilt; Caring (or Taking Care); Family care; Crying; Shock; Growth; Joint contracture; Dentition; Electrolyte imbalance; Dehydration; Malnutrition; Poor manual dexterity; Difficulty in coping with the disease; Pain; Phantom pain; Wound pain; Muscle pain; Family education; Side effect; Emotion; Negative emotion; Elimination; Coping; Balance; Fluid balance (or fluid balance); Erythema; Heat rash Erythema diaper rash; Tissue erosion; Stress; Exposure to Contagion; Fatigue; Fissure; Wound; Open wound; Epidermal wound; Frustration; Blood glucose; Hyperthermia; Hypothermia; Depressed mood; Social isolation; Infection; Inflammation; Restlessness; Skin integrity; Adverse drug interaction; Injury; Management (control) of disease by oneself; Mucous membrane; Oral mucosa membrane; Fear; Mobility; Non-adherence to dietary regimen; Nausea; Need; Need for care; Necrosis; Obstruction; Odor; Hygiene pattern; Dry skin; Weight; Privacy; Pruritus; Burning; Fall; Anger; Reflex; Motor reflex; Rehabilitation regimen; Resistance; Response to therapy; Respiratory rhythm; Bleeding; Education service (or Education); Sign of infection; Vital sign; Symptom; Symptom of infection; Sleep; Suffering; Suction; Susceptibility; Mortality rate; Scar tissue; Temperature; Trauma; Ulcer; Urine; Imbalanced fluid volume; Vomiting.
J	Delayed (or slow); Complex; Continuous; Effective; Extent; Severity; Improved; Negative; Harmed; Progress; Risk.
M	Water; Needle; Analgesic; Catheter; Wound cover (dressing); Cushioned bed cover; Mattress; Bed; Bath device; Elastic diaper; Supplemental electrolyte; Interprofessional team; Diaper; Gauze; Nutritional intervention; Gloves; Medication; Plan of care; Enteral nutrition regimen; Sedative; Nursing service; Nutrition service; Child health service; Solution; Nutritional supplement; Relaxation technique; Swallowing technique; Therapy; Environmental therapy; Electrolyte therapy; Sensory stimulation therapy; Occupational therapy; Enteral tube; Diaper change.
A	Relieve; Orient; Friction; Control; Wound care; Drain; Educate; Instruct; Immobilize; Monitor; Prescribe; Plan; Suck (or aspirate) airway; Treat.
T	Day; Event or episode; Situation; Chronic; Frequency; Present.
C	Adolescent; Caregiver; Child; Family; Patient; Parent; Newborn
L	School; Hand; Wound Location; Lip; Nipple; Skin; Foot; Tracheostomy; Nail; Intensive Care Unit; Cutaneous route; Ocular route; Topical route.

E	Non-constant terms
F	Pain relief; Oral feeding; Change; Routine change; Humid environment; Quiet environment; Care improvement; Tissue abnormality; Atrophy; Skin atrophy; Activity; School activities; Aversion; Resistant bacteria; Energy balance; Bath; Bubbles; Bubbles clustered; Simple bubbles; Repeated bubbles; Mucocutaneous blisters; Adherent border; Contact layer; Shear; Eyelid scar; Coagulation; Skin collapse; Bacterial colonization; Expressive behavior; Care; Specific care; Bacterial growth; Crust; Crust loose; Diaper occlusion effect; Antimicrobial effect; Parental effort; Stages of healing; Environmental stimulation; Sensory stimulation; Palate erosions; Exacerbation; Experience; Negative experience; Evidence of pain ; Bowel elimination; Skin involvement; Erosions on the palate; Esophageal erosions; Fragility; Skin detachment; Nutritional deficiency; Iron deficiency; Desquamation; Dislocation of the fingers; Difficulty with swallowing; Dystrophy; Rare disease; Infectious disease; Inherited disease; Photosensitivity; Friction; Fluid from blisters; Hypoplasia; Dental hypoplasia; Hypergranulation; Hyperkeratosis; Hyperkeratosis of the palms; Hypersensitivity; Oral hypersensitivity Immobility; Impossibility of diet Exuberant granulation; Periorificial granulation; Intoxication; Nose irritation; Mobilization; Coagulation necrosis; Loss of hand functionality; Loss of teeth; Loss of electrolyte fluids; Loss of blood; Loss of tissue; Follow-up planning; Poikiloderma; Deprivation; Sleep deprivation; Quality of sleep; Nail drop; Reflux; Therapeutic regimen; Rest; Skin breakdown with trauma; Sedentary; Sensation of control; Sensitivity; Minimal suction; Psychological distress; Body overheating; Tissue; Physical trauma; Psychological trauma; Trauma; Change of dressing; Redness; Vulnerability;
J	Adequate; Altered; Abnormality; Increased; Absent; Low; Complex; Discontinuation; Deterioration; Uncomfortable; Disproportionate; Painful; High; Excessive; Immature; Infected; Ineffective; Ineffective; Unstable; Intense; Soft; Warm; Multiple; Reduced; Loss; Early; On its own; Tranquil.
M	Warm water; Acetic acid; Mepilex^® Adhesive; Silicone adhesive; Pharmacological agents; Harmful agent; Calcium alginate; Specialized care; Antimicrobials; Bathing; Bath; Bath with chlorhexidine; Bath with bleach; Bathing tub; Silver salt base; Silicone base; Silicone contact layer; Short bristles; Soft bristles; Gel Mat; Adherent dressing; Non-stick dressing; atraumatic dressing; Biological dressing; Foam dressing; Soft foam dressing; Specific dressing; Adhesive dressing; Advanced dressing; Edge dressing; Chlorhexidine; Sodium chloride; Hydrogen peroxide cream; Bubble fluid drainage; Diaper rash; Dressing choice; Specific emulsion; Sponge; Silicone foams; Silicone foam by mepilex^®; Soft foams; Debridement; Keratin gel; Gastrostomy; Vaseline gauze; Kangaroo method; Swallowing skills; Hemostatic moisturizer; Hydrogel; Complex instructions; Cotton gloves; Oxygenation; Tissue oxygenation; Zinc oxide; Zinc oxide paste; Soft paraffin; Muscle relaxation; Adapted shoes; Sedative; Soft silicone; Silicone by mepilex^®; Silicone under fixation; Silicone under catheterization; Soft silicone; Sodium in water concentration; Acetic solution; Saline solution; Glucose solution; Saline solution; Iron supplementation; Handling techniques; Topical therapy; Antimicrobial therapy; Emotional treatment; Pharmacological treatment; Symptomatic treatment; Device exchange; Vaseline.
A	Relieve; Pharmacological intervention; Nutritional intervention; Instructions; Clean.
T	Daytime; Cleavage.
C	Multi-professional.
L	Environment; Limited areas; Injured areas; Home; Oropharyngeal; High friction areas; Eyelid eversion; Blister sites; Eyelid; Xerotic skin Granulation tissue; Rough zone.