Construction and validation of a booklet for home palliative care after hospital discharge

Silva, Francine Regazolli Ribeiro da; Pereira, Rosana Aparecida; Souza, Ana Carolina de; Gimenes, Fernanda Raphael Escobar; Simino, Giovana Paula Rezende; Dessote, Carina Aparecida Marosti; Lettiere-Viana, Angelina; Bolela, Fabiana

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Brasil

Acta Paulista de Enfermagem

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Brasil

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Original Article • Acta Paul Enferm 35 • 2022 • https://doi.org/10.37689/acta-ape/2022AO02812 copy

Construction and validation of a booklet for home palliative care after hospital discharge

Authorship SCIMAGO INSTITUTIONS RANKINGS

Abstract

Objective

To construct and validate an educational booklet for home palliative care after hospital discharge.

Methods

This is a methodological study developed in three stages: bibliographic survey, booklet construction and material validation by palliative care experts and patient caregivers. The validation process was carried out by 8 experts and 12 target audience representatives, selected for convenience. The Minimum Content Validity Index of 0.80 was considered for content validation and minimum agreement of 75% for appearance validation.

Results

The booklet “Eu cuido, nós cuidamos – cuidados domiciliares a pacientes em cuidados paliativos” consists of 28 pages. In the content validation by experts, the global CVI obtained was 1.0 and the booklet was unanimously approved by the target audience representatives, with agreement index of 1.0.

Conclusion

The educational booklet was validated regarding content and appearance, and can be used by caregivers in the performance of home palliative care and by nurses for guidance at hospital discharge.

Health education; Home care services; Palliative care; Validation study

Number of caregivers	Doubts and suggestions expressed
7	Doubt on nasoenteric tube handling (diet, medication and water administration)
4	Doubts on how to care for stomata (tracheostomy and colostomy)
3	Suggestion: introduce content on how to offer bed bath
2	Doubts on what to do when the nasoenteric probe is displaced
1	Tip: introduce content on how to transfer a patient from the bed to the chair and from the chair to the bed
1	Suggestion: introduce content on how the home environment should be for patient care

Item	n(%)	I-CVI *	p-value †
Content
Content meets a possible caregiver training situation	8(100)	1	1
Titles/subtitles are divided consistently	8(100)	1	1
The highlighted sections deserve to be highlighted	8(100)	1	1
Content meets the target audience’s needs	8(100)	1	1
Text has a logical sequence	8(100)	1	1
Content is relevant to caregivers	8(100)	1	1
From a scientific point of view, content is correct	8(100)	1	1
Language
Wording is compatible with the target audience	8(100)	1	1
Phrases are attractive	8(100)	1	1
Text has clarity and objectivity	8(100)	1	1
Illustration
Illustrations relate appropriately to content	8(100)	1	1
Illustrations are understandable	8(100)	1	1
Captions help caregivers to understand the image	8(100)	1	1
Number of images is sufficient to address content	8(100)	1	1
Layout
Font size and font make it easy to read	8(100)	1	1
Colors in the booklet make reading feasible	8(100)	1	1
Arrangement of items on the pages is organized	8(100)	1	1
Number of pages and material size are adequate	8(100)	1	1
Motivation
Content encourages caregivers to continue reading	8(100)	1	1
The booklet is clear and clarifies caregivers’ doubts	8(100)	1	1
Culture
The booklet is capable of meeting different caregiver profiles	8(100)	1	1

Escola Paulista de Enfermagem, Universidade Federal de São Paulo R. Napoleão de Barros, 754, 04024-002 São Paulo - SP/Brasil, Tel./Fax: (55 11) 5576 4430 - São Paulo - SP - Brazil
E-mail: actapaulista@unifesp.br

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[1] Corresponding author Fabiana Boleta Email: fbolela@usp.br